I was diagnosed with Epilepsy six years ago, and there have been many adjustments I’ve had to make to keep it under control. I was living life without this disability for 25 years. Do you really know what comes with this diagnosis? Hard falls, badly bitten tongues, confusion, jumbled words and memory loss. Worst of all, it comes with the realization that I can die at anytime. Do you know what it’s like to go to sleep and have a thought cross your mind that you may not wake up? It happened to actor Cameron Boyce, who’s battle with epilepsy came to an end at age 20, may he rest in peace. I’ve had my fair share of close calls, and you become more grateful for life when you get back with the program. I found that if you don’t have your health, you don’t have anything at all. The want of materialistic items and riches become obsolete. You subtract people that don’t add anything to your life, people that lack depth. Experiences are what you begin to crave and if there are things you want to do, you push yourself to step out of your comfort zone because you never know when your time is up.
Epilepsy is no laughing matter, and I say that because I’ve seen things on social media, where people laugh at the expense of people battling with epilepsy. People really need to understand the seriousness of this illness that affects those that have epilepsy. I was in denial of my diagnosis at first, missing a pill here and there, not truly understanding the severity of the issue. I’d go out with friends and have cocktails, I wasn’t getting good sleep, I wasn’t drinking a lot of water. Lack of sleep, dehydration, hormones, and use of alcohol, are a combination of things that are triggers and I was doing it to myself. You almost don’t want to come to terms with the fact that your lifestyle needs to change. But the changes I’m making are going to save my life.
As of 11/19/19 I’ve been seizure free for one year which is such an accomplishment. I am grateful for my family, friends, and boyfriend who have supported my struggle, and helped me in my hard times of need. Without all of them I’d truly feel helpless.
April 2019 I raised almost $400 for Epilepsy Foundation of Florida and participated in a Raise Awareness For Epilepsy walk. I’m looking forward to participating next year in 2020, and staying seizure free!